Today's main focus was getting Mallory to pee. She is starting to retain fluid again and becoming puffy which makes for a lot more work for her heart. Yesterday she peed only 4mls of fluid, today we are at 40+ which is a huge improvement, still not enough to bring down her edema, but we are on the right track.
She is starting to wake up some tonight and move around a bit more. It still has had no effect other vitals though.
All-in-all Mallory is doing well. Still no huge improvements in her function, but we are holding our own on solely medication and I am so proud of her for that. Now we just need to regain the function in her heart which may take a while, but that is okay by me!
We did have a visit from Dr, Kanter today. He agrees that it is good that she is doing well off of ECMO and holding her own. If she starts doing worse, we do have the Berlin Heart here so that is always an option. And, we are still listed as a status 1A on the transplant list, so again, still an option.
Tonight was my first night here alone. Dustin went home today to be with Madison and go back to work tomorrow. If we have a quiet day tomorrow I will probably also go home for the night and drive back the next morning... Try to get to a normalcy with all of this.
We will see what tomorrow brings.
Here is a picture without the ECMO canulas in our neck!
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My flesh and my heart may fail but God is the strength of my heart and my portion forever.
Psalm 73:26
I am so overwhelmed to hear that Mallory is continuing to improve! Keeping you in my prayers!
ReplyDelete-Dani L.
Whoo Hoo Mallory!! Keep proving them wrong sweet girl. Happy 3 week birthday! Can't wait to hear what you have accomplished by your 1 month birthday! Prayers and thoughts always with you!
ReplyDeleteHappy three wekk birthday, Mallory! I am so glad to read another positive update. We'll keep praying for you all, and we're so glad to hear that you're trying to get to, like you said, some level of normalcy with all this. - Kurt & Alli Kraft
ReplyDeleteKeep leaning on the Lord and He will be faithful!!! I am so happy to hear Mallory is holding her own and improving!!!!
ReplyDeleteSo glad to hear her progress remains positive! I've been praying for her a bunch these past few days, and I am thrilled that she is not going the transplant route as yet! Take care and take time to rest and breathe. God is good. :)
ReplyDeleteSincerely,
Nurse/ECMO specialist Sarah
So glad to heat she is doing well! See you on Saturday! Go Team Mallory Kate!! Xoxoxoxo love ya!
ReplyDeleteRach :)