Drug withdrawl... Something I never thought I would have to go through with my daughter let alone my newborn. There is nothing more painful than to see your child in pain. She had a rough night last night and this morning. She was extremely irritable and impossible to comfort. Any forward progress had been paused until we can get her through this.
Our day did improve once she got her first dose of methadone and she slept quietly for the afternoon. Her blood pressure, heart rate and respiratory rate were great. She finally seemed peaceful for the first time in a couple days.
While sleeping they decided to do a 30 minute breathing trial and she did wonderful!
Of course once I was leaving tonight they were about to take her stitches out from ECMO, which I am sure she did not respond well to, but hopefully she settles again!
We also started feeding her a very sensitive formula called Pregestimil and she was doing fairly well with it!
If she does well through the night, she will be off the 2 sedation drips and maybe we will do another breathing trial tomorrow! So after a long morning, our day actually turned out really well.
I did get another visit from Dr. Kanter today. He seemed very pleased with her kidney function. He wanted me to know that the transplant team still feels that if we were to get a heart, we would pass on it. He also said we still have the Berlin Heart, but he will probably send it back next week if we continue down this path. And, he will be on vacation next week. My first thought was 1) Dr. Kanter can't take vacation! 2) we can't send the Berline Heart back.....!! But, I will take it as a good sign that he is confident returning it because we wouldn't need it!!
Oh yeah, and, Dr. Cuadrado walked by Mallory's room today after being out all week last week and gave me a thumbs up! (it's the little things :))
Great news! Still praying that you will one day look back and see this as a growing time that made you and your family stronger as you watch Mallory grow up into a young lady. One step at a time. Keep holding on to the hope that the one who knit her together will continue to heal her!
ReplyDelete-Bill
That is overall great news! I know it's hard to watch your baby in distress, as you had to do during the drug withdrawal, but I am just so glad to hear that she continues to make forward progess. We will continue to pray for all of you! - Kurt & Alli Kraft
ReplyDeleteI love reading about the great strides Mallory makes on a daily basis. Mallory and the entire Hall family are in our continuous thoughts and prayers.
ReplyDeleteJason & Joanna Schall
On the balance, this post is full of great news! The pain meds are tricky, but try to rest easy - she's tough! She'll get through it because we're all pulling for her.
ReplyDeleteHey Jessica, We are all thinking of you and following your updates. May each day continue to be a better day and hope that Mallory recouperates quickly. You and your family continue to be in my thoughts and prayers. Neda
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