10 May 2012

Listing Mallory Kate

We spent a lot of time over the past few days talking through transplantation. We caused ourselves a lot of agony thinking through what to do. We wanted to make the right decision for her. The conclusion we came to is we cannot predict the future and medically we cannot control anything. What we can control is our family. We can love her unconditionally and have faith that the rest will work itself out.

At 3:00 pm Mallory Kate was officially listed as a 1A on the heart transplant list.

Dr. Kanter is the Chief of Pediatric Cardiac Surgery. He has been Mallory's doctor since we arrived at Egleston. He is the one who put her on ECMO and will be the one who does her heart transplant. Although we do not talk to him daily, he is always in the background making the decisions on Mallory's care. He is truly a wonderful doctor and people we have spoken to cannot say enough about him.

He came in to talk to us today once she was listed. He looked me in the eye and with complet confidence told me that at no time have we given up. Before we even accept a heart we will test her function to ensure that transplant is our only option. We will hit bumps in the road and we need to trust him.

I trust him completely.

I am at peace with our path and our decision.





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