We have now been off ECMO for 15 hours. Mallory seems to be holding her own. Every hours is like sitting on pins and needles waiting to see how she responds.
She is on a lot of sedation and still is under paralysis. They want to keep her that way through most of the night to give her heart a chance to adjust before having to keep up with her body. They hope to wean her off the paralization tomorrow to see how her heart responds.
Her lungs seem to be functioning well and she is down to 60% oxygen from 100% after the procedure today.
We are still a sick little girl and they are compensating her with medication but, all in all, she is doing very well. The next day will hopefully tell us a lot.
Dr. Cuadrado (aka Dr. Doom) is out this week. The nurse practitioner took a picture of her "today I will prove Dr. Cuadrado wrong" sign and sent him a text from Mallory asking how he thought she looked off of ECMO. He responded immediately saying she looked great off of ECMO and was glad she proved him wrong!! I told you he was human :)
More updates to come tomorrow. Thank you for all of your continued support. We will never be able to thank you all enough.
That is yet another good news. No doubt things are looking up! So hard that she didn't have the Berlin Heart rather giving her a chance to pull through on her own. Some have slow start but steady! Hang in there, Jessica. Wei
ReplyDeleteJessica - Know that you and your family are in our thoughts. It was great to read the news about Mallory this morning. We will continue to channel the positive energy your way. - Barrett
ReplyDeleteHi Jessica, You and your family continue to be in my thoughts and prayers. I am so glad to read the improvements that Mallory is making and hope that each healing moment gets you closer to taking her home sooner. Please know that there are many that are thinking of you and praying for you. Neda
ReplyDeleteYou are in our thoughts and prayers Jessica. Your baby girl is a fighter and we are behind her 100%. Nyree
ReplyDeleteSounds like Mallory is a fighter! You and your family are in our thoughts and we will continue to pray for Mallory!
ReplyDelete-Chris & Laura Coston
Jessica and Dustin: As with so many others who are walking along this journey with you, I hope our thoughts and prayers continue to be a source of strength for you. Andy.
ReplyDeleteJessica - It was so great reading the positive post about Mallory this morning, she is a fighter! You and your family have been and will continue to be in my thoughts and prayers. - Jaime
ReplyDeleteI am so glad to read this positive update! We will continue to have Mallory in our thoughts and prayers, and we will continue to pray for you both as well. We know she will make a full recovery. - Alli & Kurt Kraft
ReplyDeleteJessica,
ReplyDeleteI just heard about your daugther and my thoughts and prayers go out to you and Mallory. I am glad she is getting better and can't wait to hear about a full recovery!
Travis
Jessica,
ReplyDeleteStill praying for a miraculous recovery! Hang in there and keep trusting!
Bill
Praying for you guys. We've spent some time at Egleston and understand a fraction of what you are experiencing. Steven Gibbs
ReplyDelete