Full Feedings Down.... Next Step - Wean Heart Medication

Today we reached full feedings! Mallory is taking 23ml of formula every hour and seems to be tolerating it well.

Since I last posted, Mallory was moved to another room within the ICU. It is toward the back and much more quiet. I wish we had been here the whole time! One of our nurses made the comment that to have one of Dr. Kanter's patients tucked all the way in the back was a very good sign that she is really doing well :)It isn't step down yet, but it feels like we are on our way.

We started the process of weaning her Milranone this morning. She went from 1 to .7. Milranone is a drug that helps with the squeeze of her heart and we cannot go home on it. They plan on weaning her slowly and there is another drug that they can adjust to help compensate although there is nothing that can take the place of what the Milranone does. Once again we are at another crossroad. If she can wean off of it, I would take that as a pretty good sign that we are looking at going home sooner rather than later!

She seemed to tolerate the adjustment today, which is great news.

She is now fully off of her Valium and Methadone. The past 2 days she has been more fussy than normal, which could be from that or it could be just regular baby fussiness. It's funny how you forget that she is a baby and being fussy could just be being fussy.

This week I am praying that our Mallory's heart can step up to the challenge and tolerate being without the Milranone!

I will update in the next few days with our progress. As of right now we do not know how quickly they will go in weaning the medication... Best case would probably be at least 3 more days and we would go to .5, .3 and then turn it off completely.

Continued thoughts and prayers and love to all.