First Week at Home

I wanted to provide everyone an update on how things are going at home with our little Mallory...

We have had a couple long days, but all-in-all things are going great! Mallory can be pretty fussy at times, but the past couple of days have been so much better.

Our appointmentat the heart clinic on Tuesday went well.  They are pleased with her weight gain - she's gained almost a pound since we got out of the hospital.  The echo of her heart looked the same.  No improvements yet, but also not any worse.  I'm happy with that considering she had a pretty stressful week with coming home and all of the new things.  

They got rid of some meds which I think maybe why the past couple days have been much better. They also went up on one of her heart meds that actually can improve her function.  She was on a very low dose and the hope is they will adjust it up and her function will improve.  We go back for our next appointment on July 3rd.

Most of the time I feel like a regular mom although giving meds and dealing with a feeding tube makes me feel like a nurse sometimes. Today her feeding tube got clogged which happens over time. Dustin came home and put in another tube. He did great and it really was a piece of cake! Again, another doctor/nurse moment :)

Madison is so glad to have her little sister home. She is so wonderful with her. It is so nice to watch.

Dustin continues to update pictures on our Flickr page:


http://www.flickr.com/photos/mallorykate/